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JISCBAILII_CASES_FAMILY
T (A minor) [1996] EWCA Civ 805 (24th October, 1996)
IN THE SUPREME COURT OF JUDICATURE FAFMI 96/1273/F
IN THE COURT OF APPEAL (CIVIL DIVISION)
ON APPEAL FROM THE HIGH COURT OF JUSTICE
FAMILY DIVISION
(MR. JUSTICE CONNELL)
Royal Courts of Justice
Strand
London WC2
Thursday, 24 October 1996
B e f o r e:
LORD JUSTICE BUTLER-SLOSS
LORD JUSTICE WAITE
LORD JUSTICE ROCH
- - - - - -
T (A MINOR)
- - - - - -
(Computer Aided Transcript of the Palantype Notes of
Smith Bernal Reporting Limited, 180 Fleet Street,
London EC4A 2HD
Tel: 0171 831 3183
Official Shorthand Writers to the Court)
- - - - - -
MR. R. FRANCIS QC & MR. A. HOCKTON (Instructed by
Messrs Pannone & Partners, Manchester, M3 2BU) appeared on behalf of the
Appellant 1st Defendant
MR. D. HARRIS QC & MISS Y. COPPELL (Instructed by
Susan Orrell, Manchester City Council, Manchester, M60 2LA) appeared on behalf
of the Respondent Plaintiff
MR. G. MURDOCK QC & MR. H. LLOYD (Instructed by the
Official Solicitor, 81 Chancery Lane, London, WC2A 1DD) appeared on behalf of
the Guardian ad Litem
- - - - - -
J U D G M E N T
(As approved by the Court )
- - - - - -
ĐCrown Copyright
LADY JUSTICE BUTLER-SLOSS:
C. was born on the 10th April 1995 suffering from biliary
atresia, a life-threatening liver defect. The unanimous medical prognosis is
that he will not live beyond the age of two to two and a half without a liver
transplantation. It is equally the unanimous clinical opinion of the consultants
that it is in his interests to undergo the operation when a donor liver becomes
available. The parents, who were trained as health care professionals and are
both experienced in the care of young sick children do not wish the operation to
take place. The main issue before the judge and on appeal before this Court is
whether the Court should overrule the decision of the parents and consent to the
operation. It arises as a specific issue in respect of which the Court is asked
to exercise its inherent jurisdiction.
The background to this tragic and deeply worrying case is as
follows. The parents are not married but have a stable relationship. They
decided to apply for jobs in a distant Commonwealth country, (Country AB). The
father went to Country AB in September 1995 while C. and his mother remained in
England with her family. In February 1996 the mother took C. to visit his father
but returned with him in April to England. They went back to Country AB in June
1996 and remain there now. The mother gave evidence to Connell J in the
proceedings, the subject of this Appeal, by video link.
Once C.īs liver defect was diagnosed the medical advice at the
local hospital was for him to undergo an operation called "Kasai" with the hope
that this would improve his condition. The parents agreed and he underwent the
operation at the age of three and a half weeks but the outcome was unsuccessful.
The motherīs view of the proposed liver transplantation operation has been much
influenced by the circumstances of the "Kasai" operation and the pain and
distress caused to the baby both by it and by the consequential treatment. She
and the father came to the conclusion, having sought medical advice, that if the
"Kasai" operation proved unsuccessful, they would not wish their baby to undergo
major transplant surgery.
The mother and child were then referred to one of the few
hospitals which carry out liver transplantation operations, (which I shall call
Hospital X). She met the consultant paediatrician, (Dr A) and her team and
between September and November 1995 C. was assessed for his suitability and
found to be suitable to have the transplantation operation. The mother was
supplied with printed information about the operation,(called Liver
Transplantation An Introduction Fact Sheet 10). It said that it was:-
"one of the most major forms of surgery. It is more complicated
than other transplant operations on other organs and is only considered when
other forms of treatment no longer maintain a good quality of life....
The team will discuss the results of the tests with the parents
and tell them whether their child or baby is a suitable candidate for
transplant. It is a very big decision to make on the part of the family and
every assistance will be given to help to make the decision. If the family
choose not to proceed with the transplantation once they are acquainted with the
facts, the decision is respected. The child and family will continue to receive
the necessary medical and nursing care to give him/her the best quality of
life."
The mother did not consent to the carrying out of the operation.
Dr A made it clear to the mother that it was in the best interests of C. that
the operation be carried out and could not accept the motherīs reasons for
refusing to consent. Inevitably the relationship between Dr A and the mother
became strained. Dr A told the mother that the hospital would seek legal advice
if the mother did not consent. The mother obtained a second opinion from a
consultant paediatrician, Dr P. at Hospital Y, another centre of liver
transplant operations. Dr P. set out his conclusions in a letter dated 6th
December 1995 which was sent to the motherīs GP. Despite referring to adverse
factors, which are no longer of significance in the light of later evidence, Dr
P wrote:-
" I would consider an excellent result of transplantation to be
many years of life with normal growth with no treatment necessary other than
immuno-suppression, and there is certainly a good chance that such an outcome
could be achieved."
He and his team strongly urged the mother to consent to the
offer of transplantation at Hospital X, but said that if she and the father
after further consideration did not consent, that decision should be respected.
C. was placed on the urgent transplant list at Hospital X. The
mother then took him to Country AB against the advice of Dr A. Whilst there C.
was under the care of a consultant paediatrician, but there are no facilities
for a liver transplant operation in that country. A suitable liver became
available at Hospital X while the mother was abroad with the baby , but the
hospital was unable to get in touch with the mother and the opportunity was
lost. Dr Aīs team formed the view that the mother was not acting in the best
interests of C. and they took legal advice. The matter was referred to the local
authority of the motherīs area who involved their child protection team. The
police in Country AB were informed and visited the mother. The child was found
to be well and happy. They concluded, supported by the local social services
that no action was needed. On the return of the mother and C. to England in
April they were again referred to Hospital Y and Dr P was asked to take over the
care of C. The mother continued to oppose the carrying out of the operation. Dr
P discussed the matter with her at length on several occasions. He and his team
formed the view that she was a loving and devoted mother, and, from her
professional background, an unusually well- informed parent. They concluded that
her reluctance to submit her son to the operation was founded in love and care
for him. She was to the best of her ability discharging her duty of trust to her
child and her decision should be respected.
The mother then returned to country AB with C. and on the 17th
July 1996 the local authority sought the leave of the court to commence
proceedings under the provisions of
section
100(3) of the
Children Act
1989. Their application was granted by Hollis J on the 27th August 1996.
The Official Solicitor was appointed Guardian ad litem of the child and he
instructed a consultant surgeon, Mr R from Hospital Z.
At the substantive hearing of the application of the local
authority, Connell J heard evidence from Dr P, Mr R and Dr A, all distinguished
consultants in this specialist field. Dr P accepted the opinion of Mr R as to
the likely success of the transplant operation. In their reports and in their
oral evidence the three doctors were unanimous that the prospects of success
were good and that this operation was in the best interests of the child. Dr A
and her team were prepared to carry out the operation without the consent of the
mother if the court gave consent. The judge felt that the breakdown in the
relationship between the mother and the team of Dr A made Hospital X unsuitable
in the best interests of C. Dr P and his team, while strongly recommending the
operation, would wish to respect the decision of the mother and would not be
prepared to perform the operation without her consent. Mr R was prepared to
carry out the operation but could not answer for his team in the event that the
mother did not consent.
The local authority in their originating summons sought the
answers to three specific questions:-
whether it was in the best interests of C. to undergo surgery
for a liver transplantation,
for permission to be granted to perform the surgery
notwithstanding the refusal of the mother to consent, and
for the child to be returned to the jurisdiction for the purpose
of such surgery. They were neutral before the judge and the proposed surgery was
strongly advocated by C.īs Guardian ad litem.
Connell J, on the 17th September 1996, in a careful,
comprehensive and sensitive judgment reviewed the reasons for the motherīs
refusal to consent and said at page 12:-
"In my judgment it has proved impossible for this mother to
accept the main burden of the advice of the doctors, which is to the effect that
if C does not undergo a transplant he will die within the next 12 to 18 months.
Clinging to her own ability to provide expert care for this little boy and
observing his apparent improvement in health, I am satisfied that she has not as
yet really been able to face up to the clear and unanimous conclusion of the
doctors that transplantation would be in his best interests. Whilst I can
understand her difficulties, I conclude that her refusal to accept the unanimous
advice of the doctors is not the conduct of a reasonable parent."
He answered the three questions posed by the local authority in
the affirmative and directed the return of the mother with C. to the
jurisdiction within 21 days in order to undergo the surgery for liver
transplantation. He directed that the child be presented to Hospital Y or
Hospital Z for assessment for transplantation. He concluded at page 20:-
"In reaching a decision in cases such as this case the Court is
required to balance a number of factors. I have considered that quality of life
which is likely to be available to the little boy post transplantation, and I
have considered the pain and suffering which is likely to be undergone either
with or without transplantation. There is of course a strong presumption in
favour of preserving life, but this is not an absolute rule. It is clear that C.
will die without transplantation, that treatment is available to him, and it is
recommended as in his best interests by the three doctors who gave evidence to
the Court. In all the circumstances, and in the light of all the evidence, I
reach the clear conclusion that it is appropriate to make orders as sought."
He expressed the hope that the mother might change her mind and
consent to the operation. He gave leave to appeal.
On the appeal Mr Francis QC for the mother, informed us that the
mother has not changed her mind and that she continued to be supported in her
views by the father. He challenged the judgeīs conclusion that the motherīs
refusal to consent was unreasonable. He relied heavily upon the opinion of Dr P
that he and his team respected the motherīs decision and would not seek to go
behind it and their view of the enormous importance of the total co-operation of
the mother to the operation and the consequential treatment. In most medical
situations there was more than one answer. The doctors view was based upon
clinical grounds, but where the welfare of a child required a family decision
that decision if reasonable ought to be respected and the inherent jurisdiction
of the court ought not to be exercised to overrule it. The more borderline the
decision the more weight should be given to the parentīs view. He stressed the
possibility of further operations and further treatment and the effect upon the
mother and upon the child. The choice was to allow the child a short life where
he was well and happy for most of the time and would be likely to die peacefully
or to cause him to undergo major invasive surgery with a good success rate but
all the risks, discomfort and distress for a young child and a lifetime of drugs
and the possibility of further invasive surgery and other treatment. The
consequence of the decision was to commit the mother to a lifetime of care of
the child with the requirement of total commitment to the treatment. The
importance of the element of morale was not to be under-estimated. The mother
would find it very difficult to support the treatment, despite her specialist
training and her devotion to the child. Since transplant operations have only
been performed for 14 years on children, the statistics were inadequate as a
guide for the future. He drew a distinction between extending life and allowing
a child to die prematurely. The motherīs decision was within that band of
reasonable decisions with which the court should not interfere and coerce the
mother.
Mr Harris QC for the local authority and Mr Murdoch QC for the
Official Solicitor as Guardian ad litem of C. strongly supported the decision of
the judge that the transplant operation was in the best interests of C. They
argued that the judge was entitled to come to the conclusion that the motherīs
refusal of consent was unreasonable in the light of unanimous medical opinion
that this was the accepted treatment and the surgery gave the child a good
chance of an extended and a reasonable quality of life. The test was welfare of
the child and not the reasonableness of the parent. The view of the parents was
only one factor in the welfare test.We were reminded of the enormous strides
which continue to be made in medical knowledge and techniques which supported
the good prospects of success for the child. There was no reason to suppose
that, if the operation was carried out, this mother with her special abilities
would not respond to the needs of the child and care for him with devotion and
competence. Mr Murdoch stressed that the practical difficulties were not
insuperable and should be met if or when they arose.
I turn to consider previous decisions which set out the
principles to be followed in an application such as this which invokes the
inherent jurisdiction of the High Court. In recent years the medical profession
and local authorities have increasingly sought declarations or directions from
the High Court in difficult medical issues which involve ethical as well as
medical considerations, for instance, abortion or sterilisation. Applications
have also been made to the Court in a number of cases which might affect the
continued life of the child or adult. In the past applications in respect of
children were made within the ambit of wardship. It is however clear that
wardship is a mechanism within which to seek the decision of the High Court and
it is not necessary to make the child a ward in order to invoke the inherent
jurisdiction of the court.[see Sir Thomas Bingham MR in Re Z [1996] 2 WLR 88 at
page 113
A line of cases from 1981 has, in my judgment, clearly
established the approach of the court to these most difficult and anxious
questions. In Re B (A Minor) (Wardship: Medical Treatment) [1981] 1 WLR 1421,
the child was born suffering from Downīs Syndrome and from an intestinal
blockage which required to be relieved by an operation if she were not to die
within a few days. The surgeon respected the wishes of the parents not to
consent to the operation and decided not to operate. The judge took the same
view. This Court allowed the appeal and held that the question for the court was
whether it was in the best interests of the child that she should have the
operation and not whether the wishes of the parents should be respected. In that
case the evidence disclosed that if the operation was performed the child would
live the normal span of life of a mongol.
The House of Lords in Re B (A Minor) [Wardship: Sterilisation]
[1988] AC 199 held that a court exercising wardship jurisdiction, when reaching
a decision on an application to authorise an operation for sterilisation of the
ward, was concerned with only one primary and paramount consideration, the
welfare of the child.
This Court in Re J (A Minor) (Wardship: Medical Treatment)
[1991] Fam. 33 considered the future medical management of a severely
brain-damaged premature baby with a considerably shortened life expectancy. Lord
Donaldson MR said at page 41:-
"......it is sensible to define the relationship between the
court, the doctors, the child and its parents.
The doctors owe the child a duty to care for it in accordance
with good medical practice recognised as appropriate by a competent body of
professional opinion: see Bolam v Friern Hospital Management Committee [1957] 1
WLR 582. This duty is, however, subject to the qualification that, if time
permits, they must obtain the consent of the parents before undertaking serious
invasive treatment.
The parents owe the child a duty to give or to withhold consent
in the best interests of the child and without regard to their own interests.
The court when exercising the parens patriae jurisdiction takes
over the rights and duties of the parents, although this is not to say that the
parents will be excluded from the decision-making process. Nevertheless in the
end the responsibility for the decision whether to give or to withhold consent
is that of the court alone.
He concluded at page 46:-
"In Re B (supra) seems to me to come very near to being a
binding authority for the proposition that there is a balancing exercise to be
performed in assessing the course to be adopted in the best interests of the
child. Even if it is not, I have no doubt that this should be and is the law.
This brings me face to face with the problem of formulating the
critical equation. In truth it cannot be done with mathematical or any
precision. There is without doubt a very strong presumption in favour of a
course of action which will prolong life, but, even excepting the īcabbageī case
to which special considerations may well apply, it is not irrebuttable. As this
court recognised in Re B account has to be taken of the pain and suffering and
quality of life which the child will experience if life is prolonged. Account
has also to be taken of the pain and suffering involved in the proposed
treatment itself.....
In the end there will be cases in which the answer must be that
it is not in the interests of the child to subject it to treatment which will
cause increased suffering and produce no commensurate benefit, giving the
fullest possible weight to the childīs and mankindīs, desire to survive."
In Re Z (A Minor) (Identification: Restrictions on Publication)
[1996] 2 WLR 88 the main issue was whether the child was to be identified and
allowed to participate in a television film about her upbringing. The question
whether the courts should intervene in a situation where a mother exercised her
parental responsibilities bona fide and reasonably was directly before this
Court. Sir Thomas Bingham MR said at page 113:-
"I would for my part accept without reservation that the
decision of a devoted and responsible parent should be treated with respect. It
should certainly not be disregarded or lightly set aside. But the role of the
court is to exercise an independent and objective judgment. If that judgment is
in accord with that of the devoted and responsible parent, well and good. If it
is not, then it is the duty of the court, after giving due weight to the view of
the devoted and responsible parent, to give effect to its own judgment. That is
what it is there for. Its judgment may of course be wrong. So may that of the
parent. But once the jurisdiction of the court is invoked its clear duty is to
reach and express the best judgment it can."
From the decisions to which I have referred which bind this
Court it is clear that when an application under the inherent jurisdiction is
made to the court the welfare of the child is the paramount consideration. The
consent or refusal of consent of the parents is an important consideration to
weigh in the balancing exercise to be carried out by the judge. In that context
the extent to which the court will have regard to the view of the parent will
depend upon the courtīs assessment of that view. But as Sir Thomas Bingham MR
said in Re Z, the court decides and in doing so may overrule the decision of a
reasonable parent.
Applying those principles to the present appeal, the first
argument of Mr Francis that the Court should not interfere with the reasonable
decision of a parent is not one that we are able to entertain even if we wished
to do so. His suggestion that the decision of this mother came within that band
of reasonable decisions within which a court would not interfere would import
into this jurisdiction the test applied in adoption to the refusal of a parent
to consent to adoption. It is wholly inapposite to the welfare test and is
incompatible with the decision in Re Z.
In my view however, the judge erred in his approach to the issue
before the court. He accepted the unchallenged clinical opinion of the three
consultants and assessed the reasonableness of the motherīs decision against
that medical opinion. Having held that the mother was unreasonable he accepted
that the liver transplant would be likely to prolong the life of C. and in the
absence of any reasonable argument to the contrary he came to the clear
conclusion that he should consent to the operation. Since he had already decided
the motherīs approach was unreasonable he did not weigh in the balance reasons
against the treatment which might be held by a reasonable parent on much broader
grounds than the clinical assessment of the likely success of the proposed
treatment. Some of the objections of the mother, such as the difficulties of the
operation itself, turned out, from the evidence of Mr R, to be less important
than the mother believed. Underlying those less important objections by the
mother, was a deep-seated concern of the mother as to the benefits to her son of
the major invasive surgery and post operative treatment, the dangers of failure
long term as well as short term, the possibility of the need for further
transplants, the likely length of life, and the effect upon her son of all these
concerns. The judge did not assess the relevance or the weight of such
considerations in his final balancing exercise.
In particular he did not consider at that stage the evidence of
Dr P and his strong reservations to the effect of coercing, (as Dr P put it)
this mother into playing the crucial and irreplaceable part in the aftermath of
major invasive surgery not just during the post-operative treatment of an
eighteen month old baby but also throughout the childhood of her son. She would
inevitably be the primary carer, (no-one suggested that this baby should be
taken into care) and would be expected to care for him for many years through
surgery and continuing treatment while she, on her present view, believed that
this course was not right for her son. The total commitment of the caring
parent, in Dr Pīs view, was essential to the success of the treatment. Mr Harris
suggested to us that Dr Pīs evidence supporting the motherīs approach lacked
logic and was woolly. That suggestion is, in my view, to under-estimate the
experience of a distinguished consultant paediatrician in a specialist and still
experimental area of medicine. Moreover his evidence was supported by the advice
given to parents by Hospital X in its Fact Sheet 10.
I have well in mind the important principles set out by the
House of Lords in G v G and that this most experienced judge saw the witnesses
and in particular the mother. If the decision in this case was a matter of
assessing the clinical opinions of the doctors, the judge was clearly right to
prefer their views to the mother who could not be as well qualified to give an
opinion. But this matter has to be looked at more broadly. The mother certainly
told the judge that she recognised her son had only a short time to live if no
operation was performed. She was focusing, it seems to me, on the present
peaceful life of the child who had the chance to spend the rest of his short
life without the pain, stress and upset of intrusive surgery against the future
with the operation and treatment taking place. That is an alternative point of
view to that to which the judge came and with some hesitation, I doubt that he
was right to deem the mother to be unreasonable in her assessment of the broader
perspective of whether this operation should be carried out. But in any event
the reasonableness of the mother was not the primary issue. This mother and this
child are one for the purpose of this unusual case and the decision of the court
to consent to the operation jointly affects the mother and son and it also
affects the father. The welfare of this child depends upon his mother. The
practical considerations of her ability to cope with supporting the child in the
face of her belief that this course is not right for him, the requirement to
return probably for a long period to this country, either to leave the father
behind and lose his support or to require him to give up his present job and
seek one in England were not put by the judge into the balance when he made his
decision.
Despite the conclusion of the judge at page 20 which I have set
out above, I do not believe that he put into the balance these broader
considerations. Consequently in my view his exercise of discretion was flawed
and I am satisfied that his decision cannot stand.
It falls therefore for this Court to make the decision whether
to consent to the operation and require the return of the child to the
jurisdiction. I agree with Mr Murdoch that this Court ought not to make a
decision on so difficult and delicate an issue mainly on the problems of
ordering the return of the child when he is out of the jurisdiction, or in
ignorance of whether Hospital Z would in fact carry out the operation if the
mother continued in her refusal to consent. But they are none the less relevant
considerations which, in my judgment, have to be taken into account in the
balancing exercise, although they are not determinative. More important than
those considerations is to my mind the evidence of Dr P and the emphasis he
placed throughout his evidence upon the requirements both of the consent of the
parents and of a total commitment by the caring parent to the proposed
treatment. He foresaw grave difficulties in carrying out the operation and the
treatment without that wholehearted support of the mother.
In Re W (A Minor)(Medical Treatment: Courtīs Jurisdiction)
[1993] Fam 64, a case about the medical treatment of a girl of 16 suffering from
anorexia nervosa, Lord Donaldson MR said at page 76 that there were two purposes
to seeking consent, clinical and legal:-
"The clinical purpose stems from the fact that in many instances
the co-operation of the patient and the patientīs faith or at least confidence
in the efficiency of the treatment is a major factor contributing to the
treatmentīs success."
That passage applies, in my judgment, with equal force to the
need for the confidence in and the commitment to the proposed treatment by the
principal carer on the unusual facts of this case. Unlike the intestinal
obstruction of the Downīs Syndrome baby which could be cured by a simple
operation, C.īs problems require complicated surgery and many years of special
care from the mother.
The reservations of Dr P, to which he held despite concessions
he made in his evidence, remain of great significance and importance. His view
that the decision of a loving, caring mother should be respected, ought to be
given great weight, and are reinforced by the Fact Sheet 10 provided by Hospital
X. The alternative of the Court giving the consent and passing back the
responsibility for the parental care to the mother and expecting her to provide
the commitment to the child after the operation is carried out in the face of
her opposition is in itself fraught with danger for the child. She will have to
comply with the court order; return to this country and present the child to one
of the hospitals. She will have to arrange to remain in this country for the
foreseeable future. Will the father stay in Country AB and work or come with her
to England, giving up his job and having to seek another job? If he does not
come she will have to manage unaided. How will the mother cope? Can her
professionalism overcome her view that her son should not be subjected to this
distressing procedure? Will she break down? How will the child be affected by
the conflict with which the mother may have to cope? What happens if the
treatment is partially successful and another transplant is needed? The mother
may not wish to consent to the further surgery. Is the court to be asked again
for consent to the next operation?
The welfare of the child is the paramount consideration and I
recognise the "very strong presumption in favour of a course of action which
will prolong life" and the inevitable consequences for the child of not giving
consent. But to prolong life, as Lord Donaldson MR recognised in somewhat
different circumstances, is not the sole objective of the court and to require
it at the expense of other considerations may not be in a childīs best
interests. I would stress that, on the most unusual facts of this case with the
enormous significance of the close attachment between the mother and baby, the
court is not concerned with the reasonableness of the motherīs refusal to
consent but with the consequences of that refusal and whether it is in the best
interests of C. for this Court in effect to direct the mother to take on this
total commitment where she does not agree with the course proposed. The effect
of the evidence of Dr P respecting the motherīs decision and the prospect of
forcing the devoted mother of this young baby to the consequences of this major
invasive surgery lead me to the conclusion, after much anxious deliberation,
that it is not in the best interests of this child to give consent and require
him to return to England for the purpose of undergoing liver transplantation. I
believe that the best interests of this child require that his future treatment
should be left in the hands of his devoted parents. Once the pressure of this
litigation is over it may be the parents will reconsider whether they should
remain in Country AB or should return to this country and attend at Hospital Y
with a view to a further assessment for the purpose of carrying out the
operation. That however will be a matter for them and not for this Court.
I would allow this appeal and would answer the three questions
posed in the originating summons in the negative and would set aside the orders
of the judge.
LORD JUSTICE WAITE:
I agree. The law's insistence that the welfare of a child shall
be paramount is easily stated and universally applauded, but the present case
illustrates, poignantly and dramatically, the difficulties that are encountered
when trying to put it into practice. Throughout his clear and able judgment, the
judge demonstrated his appreciation of the dilemma to which the case gives rise.
Loving and devoted parents have taken, after anxious consideration, a decision
to with-hold consent to operative transplant treatment. Although it is
relatively novel treatment, still unavailable in many countries, doctors of the
highest expertise have unanimously recommended it for this child on clinical
grounds, taking the view that it involves a relatively minor level of risk which
they regard as well worth taking in the child's long term interests (which in
this instance include an extension of life itself). The parents' opposition is
partly instinctive and (being based on their own awareness of the procedures
involved) partly practical. It has sufficient cogency to have led one of the
principal medical experts in the field of this operation to say that his team
would decline to operate without the mother's committed support.
What is the court to do in such a situation? It is not an
occasion - even in an age preoccupied with "rights" - to talk of the rights of a
child, or the rights of a parent, or the rights of the court. The cases cited by
Lady Justice Butler-Sloss are uncompromising in their assertion that the sole
yard-stick must be the need to give effect to the demands of paramountcy for the
welfare of the child. They establish that there are bound to be occasions when
such paramountcy will compel the court, acting as a judicial parent, to
substitute the judge's own views as to the claims of child welfare over those of
natural parents - even in a case where the views of the latter are supported by
qualities of devotion, commitment, love and reason. The judge, after anxious
consideration, reached the conclusion that this case provides such an occasion.
Was he right to do so?
Of course if his decision was founded on a correct application
of legal principle, it is unassailable, however tempted individual members of an
appellate court might be to substitute a judgment of our own. These decisions,
not least because they are so difficult and finely balanced, are best left to
the discretion of the experienced judges who have the task, often a lonely and
worrying one, of weighing the numerous delicate elements (including the view
taken of the parties and witnesses) which enable a cumulative picture to be
formed of the demands of welfare in a particular case, and taking the momentous
decision which the child patient cannot take for himself.
In this instance, however, in agreement with Lady Justice
Butler-Sloss, I consider that the judge was betrayed into an error of law by his
concern with the need to form a judgment about the reasonableness of the
mother's approach. An appraisal of parental reasonableness may be appropriate in
other areas of family law (in adoption, for example, where it is enjoined by
statute) but when it comes to an assessment of the demands of the child
patient's welfare, the starting point - and the finishing point too - must
always be the judge's own independent assessment of the balance of advantage or
disadvantage of the particular medical step under consideration. In striking
that balance, the judge will of course take into account as a relevant, often
highly relevant, factor the attitude taken by a natural parent, and that may
require examination of his or her motives. But the result of such an inquiry
must never be allowed to prove determinative. It is a mistake to view the issue
as one in which the clinical advice of doctors is placed in one scale and the
reasonableness of the parent's view in the other. Had the judge viewed the
evidence more broadly from the standpoint of his own perception of the child's
welfare when appraised in all its aspects, he would have been bound, in my view,
to take significant account of other elements in the case. Those include the
parents' ties in country AB, and - crucially - the evidence of Dr P. No one
disputes that in the aftermath of the operation the child would remain in the
primary care of the mother. Dr P maintained a very clear view that - even
assuming that the operation proved wholly successful in surgical terms - the
child's subsequent development could be injuriously affected if his day to day
care depended upon the commitment of a mother who had suffered the turmoil of
having her child being compelled against her will to undergo, as a result of a
coercive order from the court, a major operation against which her own medical
and maternal judgment wholeheartedly rebelled.
All these cases depend on their own facts and render
generalisations - tempting though they may be to the legal or social analyst -
wholly out of place. It can only be said safely that there is a scale, at one
end of which lies the clear case where parental opposition to medical
intervention is prompted by scruple or dogma of a kind which is patently
irreconcilable with principles of child health and welfare widely accepted by
the generality of mankind; and that at the other end lie highly problematic
cases where there is genuine scope for a difference of view between parent and
judge. In both situations it is the duty of the judge to allow the court's own
opinion to prevail in the perceived paramount interests of the child concerned,
but in cases at the latter end of the scale, there must be a likelihood (though
never of course a certainty) that the greater the scope for genuine debate
between one view and another the stronger will be the inclination of the court
to be influenced by a reflection that in the last analysis the best interests of
every child include an expectation that difficult decisions affecting the length
and quality of its life will be taken for it by the parent to whom its care has
been entrusted by nature.
I too would allow this appeal and substitute the order proposed
by Lady Justice Butler-Sloss.
LORD JUSTICE ROCH:
This is a desperately difficult case.
The medical evidence was, as the judge stressed, unanimous on
the prognosis for this child if he did not receive a transplanted liver; he will
die in a matter of months. The doctors went further and said that despite those
matters which mean that the child is not the ideal recipient of a liver
transplant, he was nevertheless a good candidate with good prospects for a
favourable outcome.
On the other hand, no one suggests that the childs parents are
not responsible parents who are devoted to this child or that they have not
spent much time and thought in reaching their decision that their son should not
undergo a liver transplant and the treatment that will inevitably follow such an
operation. The evidence indicated that because of their training and experience
they are "uniquely well qualified" to make a decision. In my view, it cannot be
said on the evidence that was before the judge that their decision was
unreasoned.
What principles should apply to a case such as this? The
paramount principle is that the court must make the decision which it considers
to be in the best interests of the child. In reaching that decision how should
the court treat the decisions of parents? I would gratefully adopt the words of
Sir Thomas Bingham MR, as he then was, in the case of In re Z
(identification) [1996] 2 WLR 88 at page 113E where His Lordship said:
"I would for my part accept without reservation that the
decision of a devoted and responsible parent should be treated with respect. It
should certainly not be disregarded or lightly set aside. But the role of the
court is to exercise an independent and objective judgment. If that judgment is
in accord with that of the devoted and responsible parent, well and good. If
not, then it is the duty of the court, after giving due weight to the view of
the devoted and responsible parent, to give effect to its own judgment. That is
what it is there for. Its judgment may of course be wrong. So may that of the
parent. But once the jurisdiction of the court is invoked its clear duty is to
reach and express the best judgment it can."
The issue then is what is in the best interests of the child?
One factor in determining that issue to be taken into account by the court is
the decision of devoted and responsible parents. It is, I would suggest,
misleading to ask, once it is accepted that the parents are devoted and
responsible, whether their decision is reasonable or unreasonable because
parents who are responsible and devoted will almost certainly reach a decision
which falls within the range of decisions which can be classed as reasonable. If
the decision falls outside the range of permissible decisions, it is unlikely
that the parents are responsible and devoted parents who have sought only to
decide in the best interests of their child.
In my judgment the judge mislead himself by categorising the
parents decision as being unreasonable. I can see nothing to justify the
judges conclusion that the childs mother is deluding herself that with her
care the child miraculously will survive beyond that period of time forecast by
the doctors, or that the parents have failed to grasp the improvements in
operating technique and subsequent treatment which have taken place in the field
of liver transplantation in recent years, particularly in view of Dr Ps
evidence of the protracted and thorough discussions he has had with the mother.
If the proper stance for parents is that whenever there is a
treatment which may prolong the life of their child, then that treatment should
be accepted, a decision not to accept that treatment would be unreasonable. But
in my opinion that cannot be and will not be the answer in every case. Nor are
such decisions to be taken solely with medical factors in mind. The presumption
in favour of the sustaining of life is not irrebuttable and perhaps has less
weight where the issue is whether to prolong or not to prolong life by means of
organ transplantation.
The view of the parents in a liver transplant case has two
aspects. First, if, as here, the parents are devoted and responsible and have
the best interests of their child in mind, then their views are to be taken into
account and accorded weight and respect by the court when reaching its decision.
Second, the views of the parents have a clinical significance because in the
absence of parental belief that a transplant is the right procedure for the
child, the prospects of a successful outcome are diminished. This factor
explains the stance adopted at Hospital Y. It may also explain the passage in
Fact Sheet 10, published by the Childrens Liver Disease Foundation and given to
the mother in this case, in which this sentence appears:
"If the family choose not to proceed with the transplantation
once they are acquainted with the facts, this decision is respected."
I have formed the view that the judge was wrong to categorise
the parents decision as unreasonable and to disregard it in the balancing
exercise he had to perform; the judge, therefore, misdirected himself, and we,
in this court should exercise the Courts inherent jurisdiction.
There are formidable practical difficulties in this case which
stand in the way of implementing the Order which the judge in fact made. The
childs father works abroad. The mother and the child and the father at present
are living together. If the mother does not comply with the order, it is not
certain whether the Courts of the country in which they live will assist in any
proceedings to oblige the mother to comply or how long such proceedings would
take. The order involves the child and the mother returning to this country,
although the financial ability of the family to pay for that is uncertain,
particularly if it is necessary for a doctor to accompany the child during the
journey. The return of the child to this country must involve both mother and
child in distress which will arise from leaving the father and their home, and
that must in turn increase the risk that such a journey poses for this child. On
arrival in this country it is clear that the operation could not be performed at
Hospital Y, the hospital that the mother would choose were she disposed to seek
a transplant for her child, because that hospital will not perform such an
operation without the mothers willing consent. There is another possible centre
at which such an operation might be performed, Hospital Z. Whereas the surgeon
at that centre has indicated that he would be prepared to perform such an
operation although the mother was not consenting, it is not clear whether the
remainder of the medical team at that centre would be of his view or whether
they would take the view set out in Fact Sheet No 10.
Then there is the question of treatment following the operation.
Are the mother and child to stay in this country? If they are to stay for how
long? If further transplant operations become necessary will the mother give or
withhold her consent? What will be the position if at such time the mother and
child have returned to Country AB?
At present the evidence indicates that this child has a happy
and secure life with his parents in Country AB. It is true that that life will
be a very short life which will end when the child is still a baby, but at a
time before the child can become aware of the significance of his condition and
its consequences. I do not consider that it is in the childs best interests to
disrupt his present life by the court giving its consent to his undergoing a
liver transplant operation and ordering the mother to return with him to this
country with all the distress and uncertainties that that will inevitably entail
for the child in the special circumstances that exist in this case..
I agree that this appeal should be allowed.
Order: appeal allowed; the Court answers the three questions
that were posed by the local authority in the negative; set aside the orders of
the judge; order re costs in the court below stays; no order as to costs in
respect of the Guardian ad Litem; Plaintiff to pay 1st Defendant's costs of this
appeal; legal aid taxation of 1st Defendant's costs; Official Solicitor's
application for leave to appeal to the House of Lords refused; injunction order
continues until further order.
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URL: http://www.bailii.org/ew/cases/EWCA/Civ/1996/805.html